Health Data, Distributed Computing, Privacy and Trust


4 November 2021 | Congress Center, Basel


in collaboration with

  #ShareWithoutSharing  #BioData

    Organised by





With the modern-day explosion of health data, we are witnessing a fast-rising number of disconnected solutions, data silos, and varying opinions on how to best integrate the oceans of information. There are evolving discussions at societal level on what is considered acceptable regarding how these data should be used. Even if the discussions are productive, it is still questioned whether we have practical and robust technologies to enable those ambitions. Are technology developers keeping track of what the society will accept? Or are they trying to chase the mythical unicorn of health-data solutions - that is pure and perfect, but unattainable?


Workshop goal

We provide a platform for health-data stakeholders to:

  • discuss the practical aspects of privacy-preserving distributed computing;
  • review the types of problems that can be addressed;
  • assert and challenge expert opinions;
  • discuss existing solutions where applicable.

Emphasis will be placed on the 'perception' of patient privacy and the means of quantifying its preservation, with minimal impact on data useability.

The interactive program will tackle the basics and promises of federated learning, as well as the complexities of this quickly growing field and the challenges it faces. The thought-stimulating talks and panel discussions will cover innovative areas such as technology transfer into real-life application, legal and value considerations, and the relevance of performance benchmarking of the solutions offered.


Target audience

Do you have an interest in analysing and/or storing health data, and do you want to do so in compliance with international norms? Then this event is for you! It is not only aimed to inform technical professionals, but also to provide answers to the strategic level, while educating and inspiring the next generation of health-data professionals. Whether you are working in academia, pharmaceuticals, medtech, biobanking, policy, data privacy, patient organisations, IT, law, ethics, or any other field you and your viewpoint are welcome and encouraged to take part.


Join us and be part of "share without sharing" study! We will share (with sharing) the document with workshop outcomes with you after the event.


8:00 - 9:00    Check-in and coffee* (early birds)


9:00 - 9:15   Opening and introduction


Torsten Schwede, SIB and University of Basel

Tony Sedgwick, The mighty advisor




9:15 - 10:00   Morning Keynote - Privacy and health: lessons from a pandemic


Marcel Salathé, École Polytechnique Fédérale de Lausanne  slides




10:00 - 10:20   Coffee*


10:20 -10:30  A few words about today's study


           Raminderpal Singh,


10:30 - 12:00   Panel discussion - From theory to best practices: what doesn't work?


Johan van Soest, Maastricht University slide

Mark Ibberson, SIB Swiss Institute of Bioinformatics

David Manset, Be-ys

Ansgar Schuffenhauer, Novartis slide

Chair: Leila Alexander, SIB and University of Basel




12:00 - 13:30   Lunch*


13:30 - 14:15   Afternoon Keynote: Get ready for the new personal data economy


David Manset, Be-ys slides



14:15 - 15:30   Panel discussion - The problem is solved: 2025 and beyond?

Jean-Pierre Hubaux, École Polytechnique Fédérale de Lausanne  slide

Hartmut Schultze, Hewlett Packard Enterprise slide

Benoit Marchal, Partners For Patients

Chang Sun, Maastricht University

David Sturzenegger, Decentriq slide

Chair: Wen Hwa Lee, Action Against Age-related Macular Degeneration



15:30 -15:45   Our story so far - study updates


Raminderpal Singh and Leila Alexander


15:45 - 16:00   Coffee*


16:00 - 17:00   Call for action: Share without sharing study


Have your say in a group discussion: what do you think needs to happen?


17:00-17:15   Closing remarks


Tony Sedgwick, The mighty advisor


17:15   Drinks*


* Coffee, lunch and drinks are also the matchmaking opportunities, book your one-to-one meetings with other attendees.



Situated in Switzerland at the heart of Europe, Basel is one of the continent’s most convenient locations for major events. Basel is easily accessible from many European cities by plane or high-speed trains. Approximate travel times to the Congress Center:

Train station: Basel Badischer Bahnhof (DB) Train station is in walking distance to the conference site. Or 3 minutes with tram lines 2 or 6, exit at "Messeplatz".

Train station: Basel SBB or SBB/SNCF Ca. 20 minutes by public transport (3.80 CHF/ 3.50 EUR). Take tram line 1 or 2 and exit at "Messeplatz".

Basel EuroAirport (BSL) Ca. 15 minutes by taxi (ca. 40 CHF / 35 EUR); ca. 20 minutes by public transport (3.80 CHF/ 3.50 EUR). When arriving at Basel airport, take the exit to "Switzerland" (not France). For public transport, take bus line 50 to SBB train station and from there tram lines 1 or 2 and exit at "Messeplatz".

Zürich Airport (ZRH) Ca. 90 minutes by train and public transport to the conference site (ca. 45 CHF / 37 EUR). Trains to Basel are leaving from Zürich airport every 30 minutes (either direct or via Zürich main station; train schedules are displayed at the luggage belts. Take the train to either Basel SBB or Basel Badischer Bahnhof.


Congress Center Basel
MCH Messe Schweiz
Messeplatz 21
CH-4058 Basel

Location on Google Maps

COVID-19 Protection plan

To participate you need to be either vaccinated, have recovered from a recent COVID-19 infection or be tested negative for COVID-19. Please bring an official document (in an EU Language or English), issued from your country of residence or in Switzerland, to prove that you are either vaccinated, have recovered or were tested negative.

Further information on the certificate’s format and which vaccines are accepted by Switzerland can be found here.

For more information on the COVID Certificate, please have a look here.

Following the official guidelines, we need to control your certificate before you enter the conference centre. For this control, you need to bring:

  • Your certificate (printed, digital format or via the COVID Certificate App)
  • A valid ID

After the control, you will have access to all sessions and social events of the day without any restrictions.


For questions regarding registration, logistics, sponsorship or any other, please contact

sharewithoutsharing (at)


Supported by






Organising committee


Leila Alexander, SIB and University of Basel

Cristina Golfieri, University of Basel

Raffaello Ferone, University of Basel




Andrew Waterhouse, SIB and University of Basel


Program committee

Leila Alexander, SIB and University of Basel

Tony Sedgwick, The mighty advisor

Cristina Golfieri, University of Basel

Chang Sun, Maastrich University

Rhodri Saunders, Coreva Scientific

Raminderpal Singh,

Wen Hwa Lee, Action Against Age-related Macular Degeneration

Joyce Kao, Open Innovation in Life Sciences

Torsten Schwede, SIB and University of Basel